Program highlights
“Every day matters”: What it means to have a rare disease
Patients with rare disease often do not have a voice and rely on strong support from family, carers and trusted advocates.
2020 From Testing to Targeted Treatment Annual Report
Precision medicine (PM) can change patients’ lives, but its potential benefits have not yet been fully realized. Many challenges exist, from a lack of awareness to lack of access and evidence.
Why accessing precision medicine can be an impossible task for those with a rare disease
February 28 2021 marks the fourteenth international Rare Disease Day coordinated by EURORDIS.
@LUNGevity and our global partners @FT3Program and @LungCancerEu know the importance of comprehensive #biomarker ... testing for ensuring optimal #lungcancer care. #worldlungcancerday #WLCD21 https://twitter.com/FT3Program/status/1421096281599004686
#Biomarkertesting is the first step in #precisionmedicine
- ensuring that a patient gets the right treatment at ... the right time
#WorldLungCancerDay
"#Lungcancer is a complex heterogeneous disease, therefore it is crucial that people know as much about their tumor... type as possible, as this will help to identify the best possible care." - Dr. Anne-Marie Baird (@LungCancerEu). More at http://ow.ly/T30530rLDxR
#WLCD2021
About us
Our motivation
All patients deserve access to the right testing & treatment at the right time. While Personalized and Precision Medicine (PM) can transform lives, its potential benefits have not yet been fully realized.
Our ambition
Our goal is to accelerate the benefits of PM by generating better evidence, creating awareness and building the conditions for better access to targeted medicine in oncology and beyond.
The partnership
We are an independent, nonprofit, global and multistakeholder consortium, building with patients for patients. Its members include individual patients, patient organizations, pharmaceutical & diagnostics companies, healthcare professionals and medical societies, payers, HTA bodies and regulators.
Keep up to date with developments from the precision medicine ecosystem
We don’t spam. Just key info at the right time.
Founding members
