Instructions on how to use it can be found here
What is the Precision Medicine Q&A Resource Builder?
– Update existing Q&A resources, ensuring the crucial elements related to precision medicine are covered;
– Create a new Q&A resource by adapting this backbone resource to the relevant country and disease.
If you wish to adapt this resource for a given geography and/or condition, please contact us.
A co-created tool for Precision Medicine advocates and champions, including healthcare professionals, to develop or update existing precision medicine Questions & Answers resources for patients.
This tool includes a series of questions that patients can ask their health provider at different moments in time to guide shared decision-making in precision medicine.
It provides a starting point that any advocate can adapt to a specific condition and/or local context.
Why was this tool created?
Because the precision medicine landscape is fragmented. There is a lack of common understanding and standardization even for core issues, like the patient pathways or frequent needs for information
Through the Patient Engagement Open Forum session, co-creation activities, and working group calls we have identified that a common framework is needed to help standardize how information needs are identified and addressed.
To reduce duplication of effort and time investment of the advocacy community, by co-creating a tool based on existing best practices
A co-created tool for Precision Medicine advocates and champions, including healthcare professionals, to develop information resources for individual patients.
It is a customizable resource to guide and organize information resources and other ongoing efforts to support patient education and awareness.