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The Precision Medicine Questions & Answers (Q&A) Resource Builder

Group 159

A co-created tool for Precision Medicine advocates and champions, including healthcare professionals, to develop or update existing precision medicine Questions & Answers resources for patients.

Instructions on how to use it can be found here

What is the Precision Medicine Q&A Resource Builder?

It can be used to:
– Update existing Q&A resources, ensuring the crucial elements related to precision medicine are covered;
– Create a new Q&A resource by adapting this backbone resource to the relevant country and disease.

If you wish to adapt this resource for a given geography and/or condition, please contact us.

A co-created tool for Precision Medicine advocates and champions, including healthcare professionals, to develop or update existing precision medicine Questions & Answers resources for patients.
This tool includes a series of questions that patients can ask their health provider at different moments in time to guide shared decision-making in precision medicine.
It provides a starting point that any advocate can adapt to a specific condition and/or local context.

Why was this tool created?

Because the precision medicine landscape is fragmented. There is a lack of common understanding and standardization even for core issues, like the patient pathways or frequent needs for information

Through the Patient Engagement Open Forum session, co-creation activities, and working group calls we have identified that a common framework is needed to help standardize how information needs are identified and addressed.

To reduce duplication of effort and time investment of the advocacy community, by co-creating a tool based on existing best practices

Tool Context

A co-created tool for Precision Medicine advocates and champions, including healthcare professionals, to develop information resources for individual patients.

It is a customizable resource to guide and organize information resources and other ongoing efforts to support patient education and awareness.

People and organizations behind this tool