3 representative Working Groups to co-create and deliver

Working Groups

Patient and Healthcare professional Education & Awareness Working Group
Objective:

Provide education and tools to support patient empowerment and informed decision-making.

First deliverables
  • Patient organization support resources
  • Companion tool for decision making for patients and HCPs, starting with parallel Q&A module for informed decision making

Data & Evidence Working Group
Objective:

Support data & evidence development to demonstrate benefits of patient medicine on patient outcomes and put in place a data governance structure

First deliverables
  • Develop patient medicine-specific approach to Global Testing & Clinical Trial Finders, starting with gap and needs analysis
  • Design a sustainable PM data model with a key role for patients, starting with Patient-defined guiding principles for patient medicine data management

Systemic Barriers & Opportunities Working Group
Objective:

Build the accessibility conditions for patient medicine to become a reality for patients that would benefit it

First deliverables
  • Identified most important indicators for patient medicine access from the patient perspective
  • Country & conditions cards
  • Stakeholder expectations matrix & interviews

Join us

  • Shape practical solutions on specific focus areas that are most relevant to you
  • Participate in a globally active and diverse group
  • Open to Members and non-members
  • Max. time commitment of 4 hours / month

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Working groups representatives

Now 58+ Contributors, representing 35+ Organizations, in 3 Working Groups